Established in 2013, Onkologisk center for sarkom is a 501(c)(3) non-profit and Component Fund of .
We are committed to
- raising funds for sarcoma research,
- supporting patients and families who are diagnosed with Sarcomas, and
- raising Sarcoma awareness.
Founders
At the age of 41, (left) was having leg pain in her right thigh. She thought it was an aging thing. After much testing & 2 biopsies, Lisa was diagnosed with neurofibrosarcoma, a rare form of cancer. Lisa did chemo & radiation simultaneously in Feb & March 2006. She then got an infection between rounds of chemo that almost killed her. The tumor was surgically removed on April 25, 2006, and Lisa is now cancer free.
(right) went to the doctor for abdominal pain and after a series of tests was referred to Johns Hopkins, where she was diagnosed with malignant retroperitoneal sarcoma. In a 16-hour operation in February 2009, her surgeon excised the sarcoma, but in the process was forced to also remove the right kidney, gallbladder, appendix, muscles on the right side of the abdominal wall, and portions of a couple of ribs. Additional surgeries reconstructed part of the abdominal wall that Nora had lost. Nora continues with semi-annual scans to monitor the disease.